hb```B ea^zC?16I3M-X:?t)x$xDY$NXG-:;=:88 "L[wiQ|,2fJb:(S4S+J%5j e`DGs`i@0H10]k0 ].O endstream endobj 162 0 obj <. Powerful and passionate, Care Work is a crucial and necessary call to arms. " Click to enlarge . Care work: Dreaming disability justice. Do more than:Stop self-destructing. Love, gratitude, and recognition! (Google). People would ask first and be prepared to receive a yes, no, or maybe. We come together cause we're both bein' fucked over by the same people. From a 40-something queer, femme, disabled South Asian poet and writer about the abundant knowledge + skills of sick/disabled folx and how care work + healing justice is vitally necessary to anchor the work of all justice/activism. (and by the way, you do too, likely). Did you know that with a free Taylor & Francis Online account you can gain access to the following benefits? In Section II, Piepzna-Samarasinha thoroughly explores two central, intersecting themes in Disability Justice: community and accessibility. It is hard and even when you have help, it can be impossible to figure out alone., Disability Justice allowed me to understand that me writing from my sickbed wasn't me being week or uncool or not a real writer but a time-honoured crip creative practice. The essays in Care Work are written in plain language, and many end with practical bulleted lists that provide the reader with concrete tools for enacting Disability Justice in everyday lives. But it's also a choose-your-own-adventure story., If white healers slap healing justice on their work but are still using the healing traditions of some folks cultures that arent their own, are primarily working and treating white middle-class and upper-class people, are unaware or dont recognize that HJ was created by Black and brown femmes, are not working with a critical stance and understanding of how colonization, racism, and ableism are healing issues it aint healing justice., Its not about self-careits about collective care. IVA incluido. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards cocreating the decolonial living future. The Street Transvestite Action Revolutionaries (STAR) House stood for the was a gay, gender non-conforming and transgender street activist organization founded in 1970 by Sylvia Rivera and Marsha P. Johnson, subculturally-famous New York City drag queens of color. Care work: Dreaming disability justice. Quotes are added by the Goodreads community and are not verified by Goodreads. The list below is a non-exhaustive list: Take yin chiao at the first sign of an illness to reduce your chances of getting sick; Gargle hot sea salt when you feel a cough coming; Melatonin or Benadryl to help you sleep when you need to; Activated charcoal to help prevent throwing up; Mason jar with half a lemon then fill with water to get electrolytes and hydration. I want to live in a world where we value genuine achievement for disabled people. Disabled Mizrahi genderqueer writer and organizer Billie Rain started Sick and Disabled Queers (SDQ), a Facebook group for well, sick, and disabled queers, in 2010 (60). What if this is something we could all do for each other? Press-published writing on Disability Justice is only beginning to emerge, marking Care Work a crucial kind of historical archive. Please note, throughout theinterview, the term DJ refers to disability justice.Are you ready? I think the author also did a good job engaging with the critique of call-out/cancel culture; however I think in other parts of the book I felt as though she participated in calling out community institutions that are not able to make disability justice an immediate reality. Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. Erickson created a friend-made care collective as a survival strategy to give and receive necessary care, like being transported from her wheelchair to the bathroom or her bed. Since 2009, Piepzna-Samarasinha has been a lead . Leah Lakshmi Piepzna-Samarasinha (Author), Publisher: Arsenal Pulp Press Format: Book Binding: pb Pages: 262 Released: October 30, 2018 ISBN-13: 9781551527383. Our embodied experiences guide us toward ongoing justice and liberation. COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation. Creating Collective Access through Care Webs. Lots of things to think about as a care provider, an activist, a queer & trans person, and as someone with at times debilitating mental illnesses. Another challenge was even though the group had similar identities as queer and trans disabled people of color. But I am dreaming the biggest dream of my life dreaming not just a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. Child and Youth Care and Disability CYC 3000 Assignment: Getting to Know Disability Justice A deep dive into activists introduced by L. Lakshmi Piepzna-Samarasinha Due Week 2, Friday at 11:59p It is important that you begin to learn about the various people and organizations that are leading the conversation on disability justice. So much incredible food for thought on community care. The emergency care model is not sustainable and often falls apart after a few weeks or months when it is believed the injured person will become able-bodied again. I audiobooked this and the author is the narrator. That was when all the problems started, We're sistas. COMMITMENT TO CROSS-MOVEMENT ORGANIZING Shifting how social justice movements understand disability and contextualize ableism, disability justice lends itself to politics of alliance. The more seasoned disabled person who comes and sits with your new crip self and lets you know the hacks you might need, holds space for your feelings, and shares the communitys stories. Most of our meetings are open to respectful guests. through loving disabled people, i get to love myself. In this paradigm, its the person offering cares job to figure out and keep figuring out what kind of care and support they can offer. wish relied less on QTBIPOC and lists of identifiers and did more definition/exploration of femme without just another binary of femme v. masc. We host events in NYC and broadcast them here! Social Sciences. Care Work, an impeccably written and edited collection, does just that. Not a whole lot., Wed love your help. We do not disagree with this analysis. Creating care webs shifts the idea of access and care of all kinds (disability, child, economic) from collective to collective while working through the raced, classed, gendered aspects of access and care. The Facebook group became a space to share knowledge, meds, funds, and education about disabilities beyond their personal ones. There was not an intuitive knowledge of all the information across other disabilities. Her writing and performance art focuses on documenting the stories of queer and trans people of color, abuse survivors, mixed-race people and diasporic South Asians and Sri Lankans. Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975, in Worcester, Massachusetts) is a U.S. /Canadian poet, writer, educator and social activist.Their writing and performance art focuses on documenting the stories of queer and trans people of color, abuse survivors, mixed-race people and diasporic South Asians and Sri Lankans.A central concern of their work is the interconnection of systems . 5 Howick Place | London | SW1P 1WG. This assignment is intended to encourage you, and require you . Amazon.com: Customer reviews: Care Work: Dreaming Disability Justice Psychic difference and neurodivergence also mean that we may be blunt, depressed, or hard to deal with by the tenants of an ableist world., I realize how much I have wanted this and not gotten it [good love], realize how much it is branded in my heart that, to be happy, alone, and childless is a fucking gift that most women get brainwashed into relinquishing., Recently, Stacey Milbern brought up the concept of crip doulasother disabled people who help bring you into disability community or into a different kind of disability than you may have experienced before. COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation. I am dreaming like my life depends on it. The STAR house created a safe space for trans people of color while also allowing shared access to gender-affirming supplies. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. Disability justice centers queer, trans, Black, Indigenous, Person/People of Color (QTBIPOC) and what they need, how they live, and how they organize justice for themselves. Ableism, again, insists on either the supercrip (able to keep up with able-bodied club spaces, meetings, and jobs with little or no access needs) or the pathetic cripple. Sick, disabled, Mad, Deaf, and neurodivergent peoples care and treatment varied according to our race, class, gender, and location, but for the most part, at best, we were able to evade capture and find ways of caring for ourselves or being cared for by our families, nations, or communitiesfrom our Black and brown communities to disabled communities., For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. (135). Making theatre an accessible space is not necessarily taught in a theatrical or performance MFA program. Leah Lakshmi Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist. Significantly, Piepzna-Samarasinha reminds us that everyone needs and deserves care regardless of how likeable or networked we are (132). Catalyst Project: a center for political education and movement . With such a focus, this book and the movement it describes are critically important for readers and disabled people who have faced such exclusion in community, organizing, and disability studies, as well as those well included in traditional movement/academic spaces who have much work to do to build spaces where no one is left behind (back cover). Collectively-managed. Disability justice is a framework that examines disability and ableism as it relates to other forms of oppression and identity. Care Work: Dreaming Disability Justice is their fifth book of six, a collection of personal and political essays that examines disability justice and interdependence from a queer POC (person of colour) perspective. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where theres food at meetings, people work from homeand these arent things we apologize for. Access intimacy refers to a mode of relation between disabled people or between disabled and non-disabled people that can be born of concerted cultivation or instantly intimated and centrally concerns the feeling of someone genuinely understanding and anticipating another's access needs. CARE WORK DREAMING DISABILITY JUSTICE. But then nothing else changes: all their organizing is still run the exact same inaccessible way, with the ten-mile-long marches, workshops that urge people to get out of your seats and move! and lack of inclusion of any disabled issues or organizing strategies. But I know that for most people, the words "care" and "pleasure" can't even be in the same sentence. Sometimes, when you leave your whole life behind, it feels blissfully free. WorldCat is the worlds largest library catalog, helping you find library materials online. Our embodied experiences guide us toward ongoing justice and liberation. Art is memorable but also replaceable, which makes people feel like they can never say no to doing work. All rights reserved. Jan 12, 2021 - Feminist Coach Academy teaches helping professionals how to integrate feminism and social justice into their life, work and client practice. Image by Sarah Holst. Audio CD. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there's food at meetings, people work from homeand these aren't things we apologize for. . Exile and Pride: Disability, Queerness, and Liberation by Eli Claire. By closing this message, you are consenting to our use of cookies. And, let's be real, when you look at the entire white colonialist capitalist ableist patriarchy, you don't see a whole lot that looks that great in terms of love and romance for surviving queer Black and brown femmes. In this collection of essays, longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. An empowering collection of essays on the author's experiences in the disability justice movement. It's people even the most social justice-minded abled folks stare at or get freaked out by. The CCA in the Bay Area was an attempt to bring a care collective, similar to the one used for the conference, into everyday life. And it was better than expected, in different ways. Subtopic. I ask if you can offer care or support; you think about whether youve got spoons and offer an honest yes, no, or maybe. [electronic beeping] ELECTRONIC VOICE: 5, 4, 3, 2, 1. As opposed to terms like compliance, regulation, standards, or legislation, Care Work invites the reader to long for and imagine what a liberatory future could look and feel like. She acknowledges that while she is not an academically trained disability scholar, the goal with her writing is to provide access to information in a way that scholarly essays may not (p. 37). 3. INTERSECTIONALITY We do not live single issue lives Audre Lorde. How would our movements change? Second to last essay - on survivorship and the false broken/healed dichotomy and how applying a disability justice framework blows that wide open - in particular hit hard! 2018. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. Review of Care Work: Dreaming Disability Justice (2019) by Leah Lakshmi Piezna-Samarasinha: "Dreaming Disability Futures: Dispatches from Queer Crip Femme of Color Bed-Caves". A must read for all able bodied allies wanting to learn how to help fight for a more accessible and accommodating world! Poetry and dance are as valuable as a blog post about access hacks - because they're equally important and interdependent.. Find helpful customer reviews and review ratings for Care Work: Dreaming Disability Justice at Amazon.com. Especially as a healthcare worker, delving into disability justice and depathologizing crip culture are incredibly important to me to becoming a more intersectional, trauma-informed care provider. To request a reprint or corporate permissions for this article, please click on the relevant link below: Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content? Care Work Dreaming Disability Justice Leah Lakshmi Piepzna-Samarasinha. An incredibly important written work. I wish the book incorporated more of a structural lens (I mean, there was lots of discussion of systems of oppression) but not about erroding public health supports in a way that has made it harder and harder for low income and disabled people to access services that they need and deserve, and communities/families may not be able to provide safely and reliably. Piepzna-Samarasinha has lived experiences in care webs and helping people through different crises. One of the most mind-expanding and heart-opening books I have ever read. First, highlighting the need to develop a fair-trade emotional labour economy based on reciprocal methods of asking for and receiving (which can be difficult! Pginas: 263. 4.5 stars rounded up. Vancouver: arsenal pulp press, 2018. You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. Its the person receiving cares job to figure out what they need and what they can accept, under what circumstances., Everything in my family has taught me that it's safer to be a happy spinster than to try and love anybody. In a fair trade femme care emotional labor economy, there would no unconsensual expectations of automatic caretaking/mommying. Worker-run. $ 360.00. This requires creativity, imagination, and collective dreaming. However, not everyone recognizes it as such. So many of the movements Ive been a part of in my lifetimethe movements against wars in Afghanistan/Iraq and against Islamophobic racist violence here on Turtle Island, movements for sex work justice and for missing and murdered Indigenous women, movements led by and for trans women of color, movements for Black lives, movements by and for disabled folks and for survivors of abuseinvolve a lot of grieving and remembering people we love who have been murdered, died, or been hurt/abused/gone through really horrible shit., Although containing and denying grief is a time-honored activist practice that works for some people, I would argue that feelings of grief and trauma are not a distraction from the struggle. I was learning as my friends were, and people I didn't know around the country, that we had to be our own advocates, that we needed to fight back people's view that if you had a disability, you needed to be cured, that equality was not part of the equation. 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